  {"id":130643,"date":"2020-11-17T08:58:09","date_gmt":"2020-11-17T18:58:09","guid":{"rendered":"https:\/\/www.hawaii.edu\/news\/?p=130643"},"modified":"2020-11-17T08:58:09","modified_gmt":"2020-11-17T18:58:09","slug":"advanced-care-planning-program","status":"publish","type":"post","link":"https:\/\/www.hawaii.edu\/news\/2020\/11\/17\/advanced-care-planning-program\/","title":{"rendered":"New advanced care planning program for vulnerable Native Hawaiian k\u016bpuna"},"content":{"rendered":"<span class=\"span-reading-time rt-reading-time\" style=\"display: block;\"><span class=\"rt-label rt-prefix\">Reading time: <\/span> <span class=\"rt-time\"> 2<\/span> <span class=\"rt-label rt-postfix\">minutes<\/span><\/span><figure id=\"attachment_130649\" aria-describedby=\"caption-attachment-130649\" style=\"width: 676px\" class=\"wp-caption aligncenter\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.hawaii.edu\/news\/wp-content\/uploads\/2020\/11\/manoa-jabsom-nh-kupuna-1.jpg\" alt=\"group of elders playing a throwing game\" width=\"676\" height=\"381\" class=\"size-full wp-image-130649\" srcset=\"https:\/\/www.hawaii.edu\/news\/wp-content\/uploads\/2020\/11\/manoa-jabsom-nh-kupuna-1.jpg 676w, https:\/\/www.hawaii.edu\/news\/wp-content\/uploads\/2020\/11\/manoa-jabsom-nh-kupuna-1-300x169.jpg 300w, https:\/\/www.hawaii.edu\/news\/wp-content\/uploads\/2020\/11\/manoa-jabsom-nh-kupuna-1-130x73.jpg 130w\" sizes=\"auto, (max-width: 676px) 100vw, 676px\" \/><figcaption id=\"caption-attachment-130649\" class=\"wp-caption-text\">K\u016bpuna playing <span aria-label=\"ulu\">&#699;ulu<\/span> maika, an ancient Hawaiian game.<\/figcaption><\/figure>\n<p>&ldquo;I kua <span aria-label=\"nau\">na&#699;u<\/span>, Let Me Carry Out Your Last Wishes,&rdquo; is a new federally-funded, five-year research program that aims to enhance advance care planning (<abbr>ACP<\/abbr>) for Native Hawaiian elders (k\u016bpuna) and their families\/caregivers through the use of video technology. Native Hawaiians are reported to have historically low rates of <abbr>ACP<\/abbr> completion estimated at roughly 40&#37;. <abbr>COVID-19<\/abbr> has increased their need for <abbr>ACP<\/abbr> as they are one of the most vulnerable groups to develop complications of infection from the virus.  <\/p>\n<p>Funded by the National Institutes of Health through the National Institute of Nursing Research, the program is led by <strong>Marjorie Mau<\/strong> of the <a href=\"https:\/\/jabsom.hawaii.edu\/departments\/dnhh\/\">Department of Native Hawaiian Health<\/a> at the University of <span aria-label=\"Hawaii\">Âé¶¹´«Ã½<\/span> at M\u0101noa <a href=\"http:\/\/jabsom.hawaii.edu\">John A. Burns School of Medicine<\/a> (<abbr>JABSOM<\/abbr>), along with Michael Paasche-Orlow of Boston Medical Center and Angelo Volandes of Harvard University. Four community partners will also co-lead the project: Kula no n\u0101 <span aria-label=\"Poe\">Po&#699;e<\/span> <span aria-label=\"Hawaii\">Âé¶¹´«Ã½<\/span> (Native Hawaiian homestead of Papak\u014dlea), Lunalilo Home, <span aria-label=\"Ahahui\">&#699;Ahahui<\/span> o n\u0101 Kauka (Association of Native Hawaiian Physicians), and Queen&#8217;s Medical Center in North <span aria-label=\"Hawaii\">Âé¶¹´«Ã½<\/span> and Punchbowl. <\/p>\n<p>Mau, a well-known Native Hawaiian health disparities researcher, summarized her colleagues\u2019 sentiments. &ldquo;Taking care of our k\u016bpuna in this way, during these uncertain times, has never taken on such urgency for so many families. We are so pleased to be doing something that will bring useful reassurance to our k\u016bpuna and their <span aria-label=\"ohana\">&#699;ohana<\/span>. Working alongside our community partners and providing training along the way means that the program will have a lasting impact,&rdquo; she said.<\/p>\n<h2>The <abbr>ACP<\/abbr> process<\/h2>\n<figure id=\"attachment_130651\" aria-describedby=\"caption-attachment-130651\" style=\"width: 300px\" class=\"wp-caption alignright\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.hawaii.edu\/news\/wp-content\/uploads\/2020\/11\/manoa-jabsom-nh-kupuna-ipo-300x169.jpg\" alt=\"Group of elderly women weaving leaves\" width=\"300\" height=\"169\" class=\"size-medium wp-image-130651\" srcset=\"https:\/\/www.hawaii.edu\/news\/wp-content\/uploads\/2020\/11\/manoa-jabsom-nh-kupuna-ipo-300x169.jpg 300w, https:\/\/www.hawaii.edu\/news\/wp-content\/uploads\/2020\/11\/manoa-jabsom-nh-kupuna-ipo-130x73.jpg 130w, https:\/\/www.hawaii.edu\/news\/wp-content\/uploads\/2020\/11\/manoa-jabsom-nh-kupuna-ipo.jpg 676w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><figcaption id=\"caption-attachment-130651\" class=\"wp-caption-text\">K\u016bpuna weaving lauhala.<\/figcaption><\/figure>\n<p><abbr>ACP<\/abbr> entails supporting individuals and their families in gaining a better understanding of their personal beliefs, cultural values and life goals as it relates to future medical care. The <abbr>ACP<\/abbr> process gives our k\u016bpuna a voice by sharing their preferences with their families and health care providers to ensure that they are honored.  <\/p>\n<p><abbr>ACP<\/abbr> is not a new concept, however, having a plan in place and sharing it with your doctor remains a gap in the complex system of health care delivery.<\/p>\n<p>&ldquo;I kua <span aria-label=\"nau\">na&#699;u<\/span>&rdquo; aims to fill that gap by using innovative video technology to improve the <abbr>ACP<\/abbr> process to incorporate our elders preferences for future medical care. The research program will develop a video declaration process designed for Native Hawaiian elders, conduct a clinical trial to test effectiveness of the intervention program and train community-based organizations to effectively use these tools in the future, even after the research program has ended.<\/p>\n<p>Community-based research partners also share the enthusiasm of being part of the program and to bring opportunities to their collective work of serving Native Hawaiian elders and their family-caregivers.<\/p>\n<p><a href=\"http:\/\/www.center4nativeresearch.org\/\">Visit the website<\/a> or call (808) 692-1019 to learn more about &ldquo;I kua <span aria-label=\"nau\">na&#699;u<\/span>, Let me carry out your last wishes.&rdquo; <\/p>\n<p><a href=\"https:\/\/jabsom.hawaii.edu\/nih-awards-advance-care-planning-study-for-native-hawaiian-elders-and-their-families-during-the-pandemic-in-hawaii\/\">Read more on the <abbr>JABSOM<\/abbr> website<\/a>.<\/p>\n<p><em>&#8212;By Paula Bender and Marjorie Mau<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>&ldquo;I kua <span aria-label=\"nau\">na&#699;u<\/span>, Let Me Carry Out Your Last Wishes&rdquo; is aimed to enhance care through the use of video technology.<\/p>\n","protected":false},"author":16,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[30],"tags":[1411,1416,31,1363,242,9],"class_list":["post-130643","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-research","tag-covid-19","tag-covid-19-uh-helps","tag-john-a-burns-school-of-medicine","tag-manoa-research","tag-native-hawaiian-health","tag-uh-manoa","entry","has-media"],"aioseo_notices":[],"jetpack_featured_media_url":"","_links":{"self":[{"href":"https:\/\/www.hawaii.edu\/news\/wp-json\/wp\/v2\/posts\/130643","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.hawaii.edu\/news\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.hawaii.edu\/news\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.hawaii.edu\/news\/wp-json\/wp\/v2\/users\/16"}],"replies":[{"embeddable":true,"href":"https:\/\/www.hawaii.edu\/news\/wp-json\/wp\/v2\/comments?post=130643"}],"version-history":[{"count":12,"href":"https:\/\/www.hawaii.edu\/news\/wp-json\/wp\/v2\/posts\/130643\/revisions"}],"predecessor-version":[{"id":130691,"href":"https:\/\/www.hawaii.edu\/news\/wp-json\/wp\/v2\/posts\/130643\/revisions\/130691"}],"wp:attachment":[{"href":"https:\/\/www.hawaii.edu\/news\/wp-json\/wp\/v2\/media?parent=130643"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.hawaii.edu\/news\/wp-json\/wp\/v2\/categories?post=130643"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.hawaii.edu\/news\/wp-json\/wp\/v2\/tags?post=130643"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}